March 21, 2017 – The app will provide patient information and educational materials about the genetic heart condition.
The DCRI has partnered with cardiology experts to find new ways to inform and engage patients with hypertrophic cardiomyopathy (HCM), a genetic heart condition with an estimated prevalence of 1 in 500 adults.
The new, patient-focused app, called HCM Care, is available for both mobile devices and as a web-based version. The app features videos of leading HCM clinicians and engaging medical animation to answer common questions faced by HCM patients in key aspects of diagnosis, symptoms, risk assessment, and treatment. It also provides patient education about genetic testing and family screening, and other resources related to research and patient support. MyoKardia, Inc., a clinical stage biopharmaceutical company focusing on novel therapeutics for genetic cardiovascular disease, sponsored development of HCM Care.
Patients with HCM typically have abnormal thickening of the heart muscle. There is a wide spectrum of clinical symptoms, risk, and treatment considerations among HCM patients. Some patients may be asymptomatic, while others have severe symptoms such as shortness of breath, chest pain or fainting; a small percentage of patients have life threatening heart arrhythmias. Advancements in diagnosis and treatment have led to improved outcome for HCM patients.
“Many patients have important concerns and don’t know where to look for information about this condition,” said the DCRI’s Andrew Wang, MD, who led the app’s development team. “HCM Care is based on actual questions that are frequently asked by HCM patients. We hope that this will better inform patients and their families before and after they see a cardiologist about HCM.”
“MyoKardia is thrilled to support this fresh and innovative approach to patient education,” said Marc Semigran, MD, MyoKardia chief medical officer. “The clinicians at DCRI and leading HCM centers have created an exciting and empowering resource that is much needed in the HCM community.”
Patients can download the free app from the Apple or Android app stores or can use the web-based version at https://hcmcare.com.