Patients tend to be sicker and miss full benefits by the time palliative care is provided.
While heart disease is the leading cause of death in the United States, relatively few of these patients receive a referral to palliative care focusing on quality of life and value-based treatment decisions.
When heart patients are referred to palliative care, they are typically nearing death and therefore benefit from hospice services geared to end-of-life, according to a study lead by Duke Health researchers.
“Hospice care is a subset of palliative care that is generally provided when a patient has about six months left to live,” said Haider J. Warraich, MD (pictured), a former DCRI fellow and lead author of the study appearing online Friday in JAMA Network Open.
“Palliative care is much broader, focusing on improving quality of life, easing pain and suffering and assuring that the patients’ treatments going forward are in line with their values and goals,” Warraich said. “There’s a huge gap that patients with heart disease face that has resulted in them not receiving this type of care.”
Warraich and senior author, Arif Kamal, MD, a palliative care specialist at Duke Cancer Institute, reviewed referrals to palliative care from a large national database to determine when and how often patients with cardiovascular disease were referred to palliative care.
The study included more than 1,800 patients with heart disease who had been referred to palliative care from 2015-2017. Of those, about 29 percent were bed-bound, meaning they were in the late stages of disease. By comparison, only about 10 percent of cancer patients, who are the largest group referred to palliative care, are bed-bound.
General medicine physicians increased referrals of heart patients to palliative care, from 43.2 percent in 2015 to 52.9 percent in 2017. But the proportion of referrals from cardiologists declined, from 16.5 percent in 2015 to 10.5 percent in 2017.
“Our data highlight the enormous potential for increased partnerships between cardiologists and palliative care specialists in providing comprehensive, high-touch, supportive care to all affected by advanced heart disease,” Kamal said.
In addition to Kamal and Warraich, study authors include Steven P.Wolf, Robert Mentz, Joseph G. Rogers, and Greg Samsa.