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In this episode of Beyond the Endpoint, hosts Manesh Patel and Emily O'Brien are joined by Jenny Cook and Katie Ortman-Doble to discuss the importance of clinical research participation. Katie, a cancer survivor, shares her personal journey through clinical trials and the impact that research has had on her life. The conversation highlights the significance of clinical trials in advancing medical science and improving patient outcomes. Tune in to hear Katie's inspiring story and learn more about the role of clinical research in transforming lives.
Interested in Participating in Clinical Research?
- DCRI Recruiting Studies: view our studies currently seeking participants and site partners.
- Clinical Trials at Duke website: clinical trials available through Duke Health.
- ClinicalTrials.gov: a database of privately and publicly funded clinical studies conducted around the world.
- ResearchMatch: a free, secure registry developed by major academic institutions across the country.
- Duke Research Volunteer Registry: sign-up to be notified for future studies when it appears you may be eligible based on the information you provide.
Related Links
- A grim prognosis, a gamble and one patient’s fight to defy cancer — Read more about Katie’s journey
- Katie Ortman Doble's Liinks — Connect to Katie's stream of news and appearances
- Future Happy Self — Follow Katie's blog
About Our Guests
Known for her captivating presence and insightful perspective, Katie Doble provides a profound first-hand account of navigating clinical trials as a stage 4 ocular melanoma patient. She shares her journey of preserving hope amidst daunting challenges, embracing humor, and highlighting the invaluable role of a supportive caregiver team. Katie has partnered with and presented to audiences from pharmaceutical, biotech, and clinical supply sectors, including the Melanoma Research Foundation (MRF), American Brain Tumor Association, Foundation Medicine, AbbVie, and the American Cancer Society, among others. She has also consulted for organizations such as AstraZeneca, Alkermes, the Colorado Department of Public Health and Environment, Immunocore, and the FDA. Recognized for her resilience and advocacy, Katie is a past recipient of the Courage Award from the MRF and the Out Living It Award from First Descents. Additionally, she has been published in the The Washington Post, NPR, HuffPost, and TODAY.com. Katie currently works as a headhunter in Denver, Colorado, where she lives with her husband, Nick, and their doghter, Alice.
Jenny Cook, MPH, has over 20 years of experience leading healthcare engagement and communications strategy with patients, communities, and academic audiences. She is currently the Associate Director of the Trent Center for Bioethics, Humanities & History at the Duke University School of Medicine. She lives in Carrboro, NC, where she is a volunteer radio and event DJ.